The Aims of the Fibromyalgia Network
Our aims are to provide support networks and education for people diagnosed with Fibromyalgia, educate health professionals and further community awareness of the implications of Fibromyalgia.
About The Network
The Fibromyalgia Support Network of Western Australia was formed in Perth by Dr Kaye Brand, Physiotherapist. Kaye was diagnosed with Fibromyalgia in the mid 90's, finding no support and little understanding of the challenges facing those with this diagnosis. She studied overseas, including a scholarship to the USA on Advocacy Training for Fibromyalgia sufferers.
The Fibromyalgia Support Network of Western Australia was formed in Perth by Dr Kaye Brand, Physiotherapist. Kaye was diagnosed with Fibromyalgia in the mid 90’s, finding no support and little understanding of the challenges facing those with this diagnosis. She studied overseas, including a scholarship to the USA on Advocacy Training for Fibromyalgia sufferers.
In 2012 a new committee was formed and developed a strategic plan for the future. Grants were obtained from Connect Groups and Lotterywest for IT equipment and creation of our first website. In 2016, Stuart Woods retired as President due to ill-health, and Susan Ormrod took over the position of President. The network is run solely by volunteers most of which have Fibromyalgia. Today, our committee is strong, hard-working, and committed to developing the Network in line with our goals for the future, whilst continuing to grow and spread awareness.
We strive to provide support networks and education for people diagnosed with Fibromyalgia alongside educating health professionals in the management of symptoms. Through our agility and innovative strategies, our purpose is to reduce the impact of Fibromyalgia and related disorders by increasing the capacity of the Australian community, including governments, service providers, business and community sectors, working together, to deal with the impacts of Fibromyalgia.
Our commitment is to provide support and education for people with Fibromyalgia and continue the organisational development of the network to ensure the provision of updated research treatments and associated management strategies for Fibromyalgia
Why a Tortoise
You must have heard the story of the tortoise and the hare… Once upon a time a tortoise and a hare had an argument about who was faster. They decided to settle the argument with a race. They agreed on a route and started off the race. The hare shot ahead and ran briskly for some time. Then seeing that he was far ahead of the tortoise, he thought he'd sit under a tree for some time and relax before continuing the race.
He sat under the tree and soon fell asleep. The tortoise, plodding on, overtook him and soon finished the race, emerging as the undisputed champ. The hare woke up and realised that he'd lost the race. The moral of the story is that slow and steady wins the race.
Now you know why we have chosen the tortoise as our logo! Our tortoise represents strength, endurance and protection. The Fibromyalgia Tortoise is moving forward with a smile, with power in the hind legs and with a sense of purpose.